No doubt G!!! We all love M and whatever it takes to make her well again....

More prayers for my favorite girl in the world. Keith Richards ain't got shit on you.

Any new developements ?

Keep your spirits up, hon.

We can't get too complacent about this, folks. If anyone can offer some help or advice in getting Mary registered for treatment at a facility in states other than New York or New Jersey, it could well end up making a big difference.

Please do what you can. Thanks.

Nice post, tumbled. Thanks.

There are 198 people waiting for livers in New Jersey (http://optn.transplant.hrsa.gov/latestData/rptData.asp )

There are 194 people waiting for livers in Virginia (http://optn.transplant.hrsa.gov/latestData/rptData.asp )

There are only 155 people waiting for livers in Louisiana (http://optn.transplant.hrsa.gov/latestData/rptData.asp)

Florida has 358 liver people ( http://optn.transplant.hrsa.gov/latestData/rptData.asp )

Yet another Email from Freda:

She needs to contact each program herself and request to be listed there.  Multiple Listing is done at the discretion of the individual program.  So they can refuse to list her.  They can also require that she do additional testing, or repeat testing that was already done.  Your friends insurance may not cover multiple listing, or they may not pay for duplicate testing.  Multiple Listing does not have to occur in another state.   For example, there are 15 transplant programs in NY State.  Your friend could list at all of them if she wanted to.  However, listing in a lot of programs in one area may not benefit her a great deal, since she would be competing in the same pool of organs.  She could list in areas where she has friends that she could stay with – for example she could list in DC where you are and in NY, or for that matter she could list in Hawaii J!!  Anyway, you get the idea. 



Most people who multiple list research the programs which have the shortest wait times and list there.  However, keep in mind.  Your friend has to be able to  travel to that center on a moments notice.  Livers are only viable for 12 to 18 hours.  The questions are 

(1)    Can you afford to get a flight someplace or to even travel by car within a couple of hours. 

(2)    If your friend has a complicated transplant and has to stay out of her area for several months

(3)    Does your friend have someone who can manage her responsibilities at home for a couple of months if necessary

(4)    Can your friend afford to travel back and forth as much as weekly for a while

(5)    Your friend will need a support person wherever she is.  Is there someone who can put their life on hold to be with her for as long as it takes, if she is out of her area



Also remember that transplant wait times are aggregates/averages, so while a center’s times may be excellent, this does not guarantee that your friend will be transplanted in the time mentioned on a website. 



It’s very easy to become excited by ‘the transplant’.  But you must carefully consider all that is involved in listing more than a few hours from home. 

My thoughts and Prayers are still with you My RO Friend, I wish I could do more!
I read this thread everyday, hoping to hear or read the news we all want to hear, it will happen.
I want so badly to reach out to you and help. I read your earlier response "Still Dying" and  I would also suggest to you "Still Living"! I mean that in a most sincere way. Don't get down, That must be your Motivation, please.
Sorry for being preachy. Hang in there friend Spring is right around the corner, new life, and faith is right around the corner.

Stay strong M! 

MARY~
I keep trying to send you a PM and it keeps not letting me!

I know you must be SUPER busy. 

If I can help you in any way please let me know. I think its going to be tough to get registered at multiple places. Freda was saying that some people have a social worker do this for them but I don't know how someone would hire someone to do that sort of work. I can ask her if you need help with that.

Please feel free talk to her directly she is with UNOS. Freda M. Wilkins [[email protected]]

She knows the process and can provide you with any info you need.

Kilroy wrote on Mar 16^th, 2010 at 2:10am:


Aw, thanks Kilroy. I know there are other people like yourself on the board who have their own health concerns, and it means a lot that you're in my corner. However, I was trying to make a point - if there are any young (20-60 y.o.) people on this board who could help me, now would be the time to do so. The more time that goes by, the weaker I get. This is an operation where you'd be giving me a small part of yourself that will regenerate in three months. There have only been two known donor deaths in this country since 1996. The worst you're looking at is a few weeks of discomfort. I would cover all your travel and hotel espenses, as well as miscellaneous stuff.

Without my own personal donor, the odds of me getting one from a list are virtually nonexistent. Some of you have called me "brave." I am not brave - I am shit-scared that I'm going to die, and on top of that, leave my 88-year-old mother at the mercy of my heartless brother. It means the difference between having me here for her whenever she needs me, for as long as she lives, and spending her last years in a state-run nursing home and dying there alone. I've devoted this part of my life to making sure my mom is as happy as possible, all the time. She deserves it. If you ever met her, you'd know why.

This is a plea. There must be someone on this board who's healthy and fit enough to do this for me. I'm finding out that people are very weird when it comes to this sort of stuff. See, I'm the type of person who would do it in a heartbeat if the situation was reversed, and it's hard for me to imagine that there isn't ONE person on this board who will do it.

I guess it's just easier to post an R.I.P. thread.

The first requisite is compatibility of blood group, which is essential.

If you want to become a donor for Mary you HAVE to be from the blood group

                       

                                                 

which is statistically the least rare and most common blood group amongst the population. But I believe blood group O- would also be fine (although this one isn't a common one)

Gazza, you've been my greatest champion. I feel so lucky and so grateful to have you as a friend.
As Johnny Thunders used to say, "You're not a nice guy...You're the NICEST guy."