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ASKING FOR YOUR HELP - PLEASE READ (updated !!) (Read 115,521 times)
Gazza
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1025 - Mar 16th, 2013 at 10:37am
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Hard to believe that it's a year ago today that Mary had her second liver transplant - after which she was put in an induced coma from which she didnt come round for a few months. It was nothing short of a miracle that she got through that, and very frustrating now that with her liver function being fine she has had all this to go through.  Praying she's back on the road to recovery very soon.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1026 - Mar 16th, 2013 at 10:07pm
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Same here....praying and hoping. I've never seen anyone have to go through what Mary has! Sad The ups and downs are so hard----I'm praying for many more "ups" now!
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1027 - Mar 17th, 2013 at 9:03am
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Sioux wrote on Mar 16th, 2013 at 10:07pm:
Same here....praying and hoping. I've never seen anyone have to go through what Mary has! Sad The ups and downs are so hard----I'm praying for many more "ups" now!


Ditto here. Praying for always more ups ! A year ago was a miracle happened for her, and the hope is still here for her, from us all.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1028 - Mar 17th, 2013 at 1:55pm
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Mary has been transferred to University Hospital in Newark. She's on a Medical Floor and can have visitors but no phone as of yet.
Very preliminary info as Mary's Mother was not notified of the transfer (she gave her consent but presumed they'd like her know when it was to take place) and took a cab to Bayonne Hospital this morning only to find an empty bed. Naturally she was very upset. You just don't do things like that to a 93 year old!!!!  Angry  Angry Hope to have more info tomorrow when Betty has established contact with the new team of physicians.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1029 - Mar 17th, 2013 at 2:25pm
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Its a bigger and better hospital, superior in health care. Lets hope the Dr's there can provide some much needed relief for our dear girl.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1030 - Mar 19th, 2013 at 5:00am
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Bitch wrote on Mar 17th, 2013 at 2:25pm:
Its a bigger and better hospital, superior in health care. Lets hope the Dr's there can provide some much needed relief for our dear girl.


Apparently so my dear Bitch! Betty found her way to the "new" Hospital  yesterday but it was a long ride in a cab. She was very impressed with the Hospital and the staff. She met a new Doctor and basically they are doing a comprehensive assessment. They do have the records from all prior admissions including her stay in Florida.

Mary was awake, complaining (always a good sign) and even eating and drinking small amounts. Betty feels her daughter is in great hands! Yesterday was a good day.

Let's hope she's finally at a facility near home that can address her needs.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1031 - Mar 19th, 2013 at 10:41am
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Thank You, Lady Jane, for all news about our Mary. You are simply the best.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1032 - Mar 20th, 2013 at 8:36am
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She's a tough gal. SHE WILL BEAT THIS. She withstands it all!
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1033 - Mar 25th, 2013 at 5:28am
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Mary was transferred back to Bayonne Hospital Friday. Apparently she developed an allergy to one of the medications that she takes because of the transplant. It required the Specialists at University Hospital to tackle the problem and they have it under control. This is much better for Betty as far as transporation goes; she was traveling an hour each way by cab to Newark. Mary's liver is good but the hip and pain in her leg remains bad. So bad that Mary is in a terrible state of depression. She does have a phone in her room but her Mom tells me she cannot reach it.

And she still has no cell phone. I wish that we could get her a new cell because even if she didn't respond, I know she'd benefit from text messages of encourgement. I'm going to work on that.

Mary has suffered for so long; it just breaks my heart. Her spirit is nearly broken and I cannot blame her.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1034 - Mar 25th, 2013 at 9:46am
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LJ....Would an inexpensive pre-paid cell phone with text options be an idea for short term. I'm sure a bunch of us here would all chip in.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1035 - Mar 25th, 2013 at 6:33pm
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I just don't know what to say. I can only hope things will get better for her.
Thanks again LadyJane for the updates.
And yes, a cellphone seems like a great idea. That is, if Mary wants it.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1036 - Mar 26th, 2013 at 11:13am
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I'll call Mary's mother and ask her who Marys cell phone provider is and maybe we can reactivate her old number, if she still wants it. Maybe someone has a spare phone to give her. I have a used blackberry that still works perfectly from Sprint. I can give it to her if she has Sprint as her carrier and activate it using her number. If she doesnt have Sprint than my phone wont work but maybe someone else here has an extra phone too. I'll find out and post it here.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1037 - Mar 28th, 2013 at 9:02am
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Marys mom does not know who her cell carrier is. I told her to ask Mary on her next visit. She said Mary is not doing well, she is in a bad depressed mood, but she will ask Mary if she wants a cell phone. Hopefully Mary will say yes. She is having a very rough time of it and needs our support. Paula sent flowers. Someone gave Mary a baloon but she untied it and now its on the ceiling. The nurses were not amused but I am!
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1038 - Mar 30th, 2013 at 10:27am
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Not sure if the cell phone is a good idea at this point Ellen. Betty brought her cell phone to the Rehab facility yesterday and help it up for Mary to speak to me. It was heartbreaking. "Paula, Paula, I need your help. I need you now more than ever. I'm stuck in this place and I have to get out." I tried to calm her down but she was just too aggitated to talk to me in a calm tone. Poor thing has been through so much.

Even if she had a phone, if she's not even feeding herself, I doubt she'd be able to use the phone.

She has no strength in her hands and the phone would likely be dropped.

They are going to attempt to start Rehab therapy on Monday but in her current state of mind, I'm not sure Mary will cooperate.

I have spoken to another family member who is close to Betty and Mary and she is now going to attempt to get some definitive answers from the Doctors.

Clearly we have not been given all of the information. And her Mother needs an advocate as well. Someone to push for answers. Mary's decline since that plane ride home from Florida has never been fully explained to anyone. She's been in one hospital, transferred to Newark, transferred back to Bayonne and now transferred to a Rehab Facility in Jersey City, with talk that she'll be transferred again. WTF???? And a 92 year old woman, who has great trouble walking is taking cab rides every day. It's overwhelming; it's sad and it's just wrong.

That's where we are.

And for those of us who are so far away we just have to pray.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1039 - Mar 30th, 2013 at 12:12pm
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This very sad news indeed. Doesn't sound like she could handle a bunch of calls or texts yet she also seems to be reaching out to LJ for help. Yes being so far away makes it tougher on those of us that feel we should do something....anything to help. I hope that during hospital stay she didn't contract a staph infection of some type.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1040 - Mar 30th, 2013 at 8:28pm
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So she untied the balloon a few days ago and now she cant use her hands? They were fine, I dont get this either. Move her again, WTF? Omg this is frustrating and frightening.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1041 - Apr 1st, 2013 at 4:06am
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LadyJane wrote on Mar 30th, 2013 at 10:27am:
And for those of us who are so far away we just have to pray.


I will.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1042 - Apr 3rd, 2013 at 7:11pm
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Betty said Mary is back in Newark University Hospital. More pain and more problems but her mind is clear. T-Mobile is the cell phone carrier if anyone has a spare phone for her.  They are waiting for answers from more tests that were done. She sounded wiped out from taking a cab back and forth, which is expensive and time consuming but she sees Mary every other day. God bless them both.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1043 - Apr 3rd, 2013 at 7:31pm
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Jesus, they've both been through so much.
I don't even know what to say anymore. I'm just hoping and praying things will finally get better.
Wishing there was more to do than just praying.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1044 - Apr 4th, 2013 at 7:26am
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Betty called me last night and she is at her wit's end.
I'm really worried about her. She's pushing herself way too far past her limits.
Mary needs to stay in one place; this constant transferring back and forth is not doing her any good at all.
She's not improving physically or mentally.
I'm not impressed with her current medical team and there isn't a damn thing I can do about it.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1045 - Apr 5th, 2013 at 2:26pm
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LadyJane wrote on Apr 4th, 2013 at 7:26am:
Betty called me last night and she is at her wit's end.
I'm really worried about her. She's pushing herself way too far past her limits.
Mary needs to stay in one place; this constant transferring back and forth is not doing her any good at all.
She's not improving physically or mentally.
I'm not impressed with her current medical team and there isn't a damn thing I can do about it.

THIS IS HORRIBLE
BREAKS MY HEART TO KNOW SHE HAS NO ONE TO ADVOCATE FOR HER.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1046 - Apr 5th, 2013 at 3:02pm
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BILL PERKS wrote on Apr 5th, 2013 at 2:26pm:
LadyJane wrote on Apr 4th, 2013 at 7:26am:
Betty called me last night and she is at her wit's end.
I'm really worried about her. She's pushing herself way too far past her limits.
Mary needs to stay in one place; this constant transferring back and forth is not doing her any good at all.
She's not improving physically or mentally.
I'm not impressed with her current medical team and there isn't a damn thing I can do about it.

THIS IS HORRIBLE
BREAKS MY HEART TO KNOW SHE HAS NO ONE TO ADVOCATE FOR HER.


Actually Mr Perks, Mary's cousin has stepped up as an advocate.
She lives in New Jersey and his very close to Mary and Betty.
She's had some difficulty making contact with the Doctors but she is on it and she's determined to get some answers.
What I know as of now is that Mary is at University Hospital in Newark.
We are hoping she will remain there until they can get her back on track.
It remains heartbreaking as I fear the longer she lingers in this horrible pain, the harder it will be for her to
regain her strength and will to go on.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1047 - Apr 5th, 2013 at 7:45pm
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I'll say it again, my best wishes. And this woman has the heart of a thousand beings. That explains all the loving.


My best wishes.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1048 - Apr 13th, 2013 at 10:59am
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Mary is being transferred today to a Nursing Home/Rehab Center in Fairlawn New Jersey.

Unfortunately she is no better. I have not had a conversation with Mary since the morning she left Florida. Her physical and mental health have steadily deteriorated since that flight home. I have no definitive medical answers as to what exactly happened; just many opinions that I get second hand by a variety of health professionals who have no real connection to or history with her.

I can only hope that with some good Rehabilitation she will at least be able to communicate via telephone.

That is where we are.
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Re: ASKING FOR YOUR HELP - PLEASE READ (updated !!
Reply #1049 - Apr 13th, 2013 at 6:42pm
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Thanks LadyJane.
It looks like we can only hope and pray.
I will keep on doing that.
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